Chicago. Ben is still in the hospital back in Connecticut, and I am here – at the NAMI National Convention. This isn’t the first time I’ve had to make this decision. Six years ago, in 2005, I left Ben to go to St. Louis for another NAMI function, so I could become a state trainer for the Family-to-Family program. Then, as now, I don’t regret my decision. Ben is in good hands (City Hospital staff is wonderful, and Ben is responding – knock wood – to his meds at last) and his sister and brother-in-law are nearby to visit and, well, just to be there.
And, as one speaker reminded us yesterday, Ben has to take care of himself too. I can supply the support, the framework, put the pieces into place – and will continue to do so – but this is Ben’s journey too. And, for now, my best decision is to take care of myself. So, husband Geoff and I hit the road on Wednesday and drove 14 hours to be here.
The right decision. Here, I am surrounded by a couple of thousand of people diagnosed with mental illness (including Jessie Close of BringChange2 Mind), families of those diagnosed (including newsman Bill Kurtis and journalist Pete Earley, author of Crazy: A Father’s Journey Through America’s Mental Health Madness) and friends both personal and professional. This is where we all need to be right now – talking about everything from proposed budget cuts for Medicaid (talk about crazy!) to the need for Assisted Outpatient Treatment (the lack of it in Connecticut – one of the only six states without it – is the reason Ben has had his relapse).
We all need to be here. We all need to share, advocate, learn – and, yes, laugh. So much has been done, so much needs to be done. I’ll share more when we get home. Right now there’s a workshop on Supported Housing and I’m on my way.