Chicago. Ben is still in the hospital back in Connecticut, and I am here – at the NAMI National Convention. This isn’t the first time I’ve had to make this decision. Six years ago, in 2005, I left Ben to go to St. Louis for another NAMI function, so I could become a state trainer for the Family-to-Family program. Then, as now, I don’t regret my decision. Ben is in good hands (City Hospital staff is wonderful, and Ben is responding – knock wood – to his meds at last) and his sister and brother-in-law are nearby to visit and, well, just to be there.
And, as one speaker reminded us yesterday, Ben has to take care of himself too. I can supply the support, the framework, put the pieces into place – and will continue to do so – but this is Ben’s journey too. And, for now, my best decision is to take care of myself. So, husband Geoff and I hit the road on Wednesday and drove 14 hours to be here.
The right decision. Here, I am surrounded by a couple of thousand of people diagnosed with mental illness (including Jessie Close of BringChange2 Mind), families of those diagnosed (including newsman Bill Kurtis and journalist Pete Earley, author of Crazy: A Father’s Journey Through America’s Mental Health Madness) and friends both personal and professional. This is where we all need to be right now – talking about everything from proposed budget cuts for Medicaid (talk about crazy!) to the need for Assisted Outpatient Treatment (the lack of it in Connecticut – one of the only six states without it – is the reason Ben has had his relapse).
We all need to be here. We all need to share, advocate, learn – and, yes, laugh. So much has been done, so much needs to be done. I’ll share more when we get home. Right now there’s a workshop on Supported Housing and I’m on my way.
0 thoughts on “NAMI National Convention:Where We Need to Be”
God bless! You guys are unbelievable! Ben is more than lucky to have you there and
clearly you need to be there for yourselves.
Take care of each other and drive home safely.
When you feel like tlaking, we’re here.
Love, Linda & George
Thanks so much to you both, for support and so much more
Glad you’re there. I’ll be looking for your updates. And glad to see mention of BrongChange2Mind. They do good work.
You’re a noble soul, a triumphant mother, and a gift to this cause.
Well-wishings from wells deep,